warpehoski@mchsi.com
Life after Trisomy..........
....Three years Later
keeping her memories alive
I'm not into making people comfortable, because
Jessica will never be forgotten - she is a part of our lives and always
will be. I think of her EVERY day, and we speak of her often. Sometimes
there are tears, but mostly it's sweet soft memories of the lessons
that we've learned. This is the healing part that time takes care of.
The jagged edges of the hole in my heart have softened now. I've been
through the stages of grief - actually I thought I was going to get to
sidestep the anger part until we had our last little one - that's when
I got angry. I am human, and maybe those psychologists know what they
are talking about. Guess I was in the denial stage when I was told
about all the gobbeldie gook that I would go through.LOL Even after the
acceptance of what has happened and that life goes on, the waves of
sadness, anger and denial do still emerge. Maybe we get better at
controlling it, or maybe the waves aren't as severe, but there still is
a tide. Why am I rambling on? I hope that even if only one person reads
this and is able to say - "wow, I'm not alone" or realize that it's
okay if it's been 6 months or two years and the pain is still there.
Everyone grieves differently - you ride your own car on this roller
coaster - and that's okay.


How do you accept this (stage 5 of
the grief process)? FAITH - I know that I have something that many
don't: My own personal guardian angel while I'm here and a brand new
baby to rock when I get to Heaven. We even joke that we have to keep
our acts clean now so the gates will open when our number is called.
I've still got a baby to raise. I'm sure the Big Guy is doing a good
job keeping an eye on her, but she'll still need her mommy when I get
there. My work is not done..

If you are here because you have
lost a child or know someone that has lost a child, my heart goes out
to you. There is no band-aid, pill or surgeon that can fix the hurt.
They can't use plastic surgery - the scar will always be there.
Unfortunately, the cliche - "Time heals" - has some truth to it. I
didn't want to believe that because I thought that would mean that
Jessica would be forgotten. Maybe that would make it more comfortable for people. I guess
With some of the money from the
memorial, we built a garden in her memory. Mike put a lot of sweat and
tears building retaining walls since the yard was a cleared off ravine.
When I looked out the window, I knew that my little angel was still
growing. We recently moved and leaving her special place was really
hard. We transplanted her lilac bushes and Christmas tree and we've
taken some shoots off of the perennials that are there. She will always
have a garden wherever we may be. I can still look out my window and
know that she is here.
a new blessing, robbed of innocence
In October of 2003 we
added another sweet baby to our family. Rylee Nicole Warpehoski (named
after her two sisters) joined the world on October 20, 2003 at 7:50am
weighing a whopping 9 pounds 13 ounces. The pregnancy was scary for us,
but somehow I knew that even though we had been through the worse
possible scenario of losing a child this one would be okay and if not,
we would deal with it. The pregnancy and delivery however were so
different from all the others. I didn't want a boy or a girl - I wanted
healthy and I would settle for alive. Is that sad? Settle for alive!
Then there were the trips to Peoria, IL for the level 2 & 3
ultrasounds. There were the horrible memories of the trips from the
past, as well as the anticipation of the results. One of the best days
of our lives was on May 15, 2003 when we found out everything was fine
with the baby. We also found out that day that she was a she. This was
a strange feeling. I was really hoping for a boy - only because I
wanted EVERYTHING different than the last time. I was worried that if
she were a girl we'd be going down the same path. Unwarranted and
untrue. How could I be disappointed that she was a girl, when I only
wanted a boy because I thought that would mean "healthy". Today Rylee
is a sweet little girl that, knock on wood has been extremely healthy.
Not only is she healthy, but is also enjoying an overabundance of love.



This is our first family photo after
Rylee's birth. Is that a halo over Rylee or did her big sister make an
appearance for her big day?
Rylee knows that
there is a baby named Jessie that's not here. She knows that Jessie has
flowers and we send helium balloons to her whenever we can. One day,
not long ago we went to our favorite balloon donator (thanks
Applebees!) and decided to go to the park afterwards. We didn't think
Rylee was very willing to share her balloon that day, but as soon as
she saw the slide at the park she let go of the balloon and said, "here
go Jessie". As I was smiling, watching through tear filled eyes the
balloon making it's way to Heaven, Mike chased Rylee to the slide. What
a moment!
A DIFFERENT CHILD
People notice
There's a special glow around you.
You grow
Surrounded by love,
Never doubting you are wanted;
Only look at the pride and joy
in your mother and father's eyes.
And if sometimes
Between the miles
There's a trace of tears,
One day
You'll understand.
You'll understand
There was once another child
A different child
Who was in their hopes and dreams.
That child will never outgrow the baby clothes
That child will never keep them up at night
In fact, that child will never be any trouble at all.
Except sometimes, in a silent moment,
When mother and father miss so much
That different child.
May hope and love wrap you warmly
And may you learn the lesson forever
How infinitely precious,
How infinitely fragile
Is this life on earth
One day, as a young man or woman
You may see another mother's tears
Another father's silent grief
Then you, and you alone
Will understand
And offer the greatest comfort.
When all hope seems lost,
You will tell them
With great compassion,
"I know how you feel,
I'm only here
Because my mother tried again."
written by Pandora Diane Widron
stage 2 - the Anger
Now I just cringe
when I hear a pregnant woman complaining about being tired or feeling
bloated or fat. These are nothing compared to the joy and relief of
having a beautiful healthy baby. When Rylee was born I didn't feel that
surge of excitement that you are supposed to have. There first was a
fear of getting attached, then anger - for what we missed with Jessica.
It really struck when we brought Rylee home. The ride in the wheelchair
to the car was so overwhelming - just 18 months before I was on that
ride with no baby in my arms - did I mention the anger! Then of course
are the emotions that submerge because now Rylee, who is also innocent,
is being robbed of the "normal" babyizms. Oh, she's still spoiled
rotten, but these are the emotions that were happening at that time.
I
will be honest - I don't know where I would be if we didn't have Rylee.
Each month before I got pregnant with her the anger was building. I
didn't realize it until she was born. I would not be truthful if I said
that it did not make me angry to know that people thought that I was
okay because I had a new baby to replace the one I lost. Rylee has made
the healing much easier but she in no way replaces Jessica, and that is something that I now realize many people don't understand unless they've "walked the walk".
where we are now
Nicole is just
starting her senior year in high school. Jake is in 8th grade, the age
Nicole was when Jessica was born. Jessica is a bouncy 3 1/2 year old
living with our Father, and Rylee is almost two. Is it strange that I
mentioned Jessica's age? Yeah, probably, uncomfortable? Definitely, but - is it wrong? This is the on
going question that plagues all that have lost a child. I know that I
had four babies, yet I only set the table for three. How do I answer
"how many children do you have?" I've heard many answers, and don't
like any. If I answer 4, there is the look of pity from the poor soul
that asked the innocent question. If I answer 3, there's the internal
surge of guilt for not acknowledging one of my children. Typically I
answer with "I have a 17, 13 and almost 2 year old." I can deal better
with the look of pity for having two teenagers than the other pitiful
look. ;0) For some reason it doesn't seem like I'm ignoring Jessica as
much by not mentioning her age then if I just say three. Does it make
sense - I don't know but that is one small benefit that I am entitled
to - people seem to allow you your moments of insanity.


Nicole is very active in the church
right now. Something that really makes me proud. She's in the youth
group as well as choir and a youth member of the
Mission Board.
She's looking at colleges right now and plans on going into Sociology
and social work - ideally with kids and adoption. Nicole has been in
the Natural Helper program and is a member of the National Honor
Society. She also works part-time at a sandwich shop and plays softball.
Jake
is involved in football, baseball and track. He also plays the
saxophone for the marching, jazz and regular bands at his middle
school. He has never had anything less than an A- on his report card.
Both he and Nicole have earned high honors at school. This year he will
be involved in Confirmation class at our church.
Mike still
plays golf and softball. He also is the chairperson for the Christian
Education Board at our church. In his spare time he enjoys taking Jake
hunting and fishing as well as spending time with us girls.
Currently
I am a full time stay at home mom and I thank God that we are able to
afford that luxury. I don't know how I managed working full time with
the oldest two, but you do what you have to at the time. There are
times when I go nuts and think that I need to get a life, but I have a
life - a wonderful life and I wouldn't trade it for anything. My
husband, children and extended family are everything to me. Having
Jessica has given me a true appreciation for this. So please don't tell
me to get over it - Jessica still has much to teach.


Jessica Riley Warpehoski