EB Communities ~ A comprehensive forum for
those with or affected by EBForums I frequent
EB Communities ~ A comprehensive forum for
those with or affected by EB
Fertility
Friend ~ for those who are trying to
get pregnant and for those who succeeded
DelphiForums.com
~ my favorite places being Fab '04 moms, Jan/Feb/March 04 babies and
Midwest Family & Parenting
Connected
Moms ~ a haven for new moms and moms to
be
My Yahoogroups:
My YAHOOGroups For several years now, I have been a
member, owner and moderator of many
Yahoogroups. The purpose of these
forums that I have belonged to have varied from groups about pets, to groups
about pregnancy and even a few groups, which I moderate and am very active in,
about Epidermolysis Bullosa. Below, I have provided a link and description
of some of the groups I belong to:
EBWorld
~ Owned and moderated by
Silvia, a mother of a child with a severe form of Epidermolysis Bullosa.
This list is made to bring Epidermolysis Bullosa parents, patients
anyone interested in learning more about EB together as an informational
and supportive forum. Suggestions and experience sharing is encouraged.
All forms of EB are discussed and dealt with. Activity Level =
HIGH
EBSimplex
~ Discusses issues
concerning the mildest form of Epidermolysis Bullosa, EB Simplex (Which
includes Dowling Meara, Koebner, Weber-Cockayne and Dominant Dystrophic)
Activity Level = MODERATE
EBWomen
~ Strictly for women age 18
and up with Epidermolysis Bullosa. All forms of the disorder are
discussed. Activity Level = MEDIUM HIGH
EBFamilies
~ Support group for
families affected by EB in some way. Activity Level = HIGH
All_We_Need_Is_Love
~ Aimed
towards lower income families Activity Level = MODERATE
Feb_2004_Babies ~ For mothers of babies born in February, 2004. Activity Level = HIGH
Only_Child ~ For moms of only children. Activity Level = HIGH