Welcome to the Femoral Hypoplasia Parents Group. We are parents of children with femoral hypoplasia syndrome. Are goal is to share information and emotional support with other parents concerning this rare and complicated syndrome.

We have web pages covering medical DESCRIPTION of the syndrome, common DEVELOPMENTAL milestones, possible SURGERIES that may be required, THERAPIES that will aid development, FINANCIAL information concerning Medicaid, SSI, Shriners, and insurance.

If you have a child with femoral hypoplasia and would like to share information with other parents, you can JOIN us. There is no charge for membership.

If you have questions about the syndrome, or would like to talk to us about anything please feel free to CONTACT us.

We know how overwhelming and emotionally exhausting all the medical and therapy appointments can be. As parents you are part of your child's medical team and need to learn to be proactive for him or her. There are times you will have to say that you don't agree to something without another opinion, and sometimes you will "know" that something is wrong and have to convince someone to listen. We want you to know that we care, and we understand how hard it can be.

Family and friends try to understand but they just can't identify with some of the feelings that come with having a very special and complex little person. Anyway we're here if you need us and any information you need just ask. Please don't feel like you are intruding or anything, there just aren't many families where we are.